The Good Days and The Bad.
One thing about having a chronic illness is I don’t get to control it. I feel like this becomes apparent when I have my good and bad days. For me this has been one of the hardest things to deal with. I can never plan ahead because I don’t know how I am going to feel the next day. I feel like this is one of the hardest things to explain to people who don’t have a chronic illness. A lot of people don’t realize that I am always sick, just some days are easier than others.
I was talking with my friend Kayla (she is also a spoonie) the other day, and she finds it can be frustrating to have to explain to people how one day she can be able to go out and run errands or hang out with people and the next day she isn’t able to do those things because it’s a bad day. I completely agree with her. I find sometimes people don’t understand that our health can flip on a dime.
As someone with chronic illnesses, my bad days can be completely different than someone without a chronic illness. My bad days aren’t necessarily things going wrong or just having an off day. Mine could be not being able to get out of bed because of pain, it could be the days where I struggle to take a shower, or get dressed or even something simple as getting up to get food out of the kitchen. My bad days are the days where my normal daily tasks are hard for me to complete.
Sometimes my bad days can get even worse if I try and do things while I am having bad days. If I manage to make it out of the house on a bad day, the next day for me can be even worse because I overdid it the day before. It’s a constant struggle between doing enough to not feel like I wasted a day and not doing too much and regretting it the next day. I hope everyone is having a good day.